Journey of Hope Grief Support Center

                           3900 West 15th Street, Suite 306, Plano, Texas 75075, (972) 964-1600

                       Journey of Hope ~ 10 Years of Service


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March 2002, Vol.3, Issue 4            Rachael’s Gift 

Somehow, I knew something just wasn’t quite right. Looking back, I wonder if God was trying to prepare us for what was to come. The sonogram for our 3rd child came at 20 weeks of pregnancy and my husband Brad and I were anxious to have it over with so we could be assured that everything was ‘normal’. It wasn’t. Our baby had several physical abnormalities: the most serious of which was the underdevelopment of the four chambers of the heart. Further tests were necessary to determine specifically what was wrong. Shock, fear and total disbelief numbed our minds and hearts for the next two days before our 2nd doctor’s appointment. A level II sonogram and an amniocentesis confirmed I was carrying a Trisomy 18 baby – Edward’s Syndrome. These babies, by some unknown cause, have an extra 18th chromosome, which causes substantial defects in all their major organs and produces 1 in 8000 live births We will never forget the overwhelming, intense pain upon hearing the doctor’s next words. “This child isn’t compatible with life - you should consider terminating the pregnancy.” I don’t think I’ve ever felt closer to my husband in that moment as we held each other and wept and felt each other’s hearts break.

The second half of our pregnancy was emotionally very difficult. Sharing the news with our two other children, Meghan, 5 at this time, and Ben, blessedly oblivious at 3years old, and our extended families and friends was hard on everybody - who knew what to say? Comments from unknowing strangers wishing me well with the baby were bittersweet. We prepared for the chance that Rachel, as Meghan had named her, might live, if only for a short while, while preparing for her death by planning her funeral. At one week before my due date, our 2nd daughter and third child was born on January 7, 1999. She weighed in at only 3 lbs. 7 oz. And 16½ inches in length. For two irreplaceable hours, Rachel was held in loving arms while her weak, frail body hung on. She died peacefully and left a beautiful impact on our lives.

As the next few weeks passed, the meals stopped coming, the friends and family calls slowed down and life went on, as it should for everybody else. Our journey, however, had just begun. A good friend had told us about Journey of Hope and although I had been going to a support group alone, the idea of something for our children was just what we needed. As a family, we started faithfully attending the Tuesday night meetings and found it was truly the highlight of our week. My children couldn’t wait to go and loved being part of such a positive, caring group. Brad and I found that we seemed to talk more openly about our grief in the comfort of our intimate adult group. For a solid year, the Journey of Hope was the warm, soft blanket we wrapped ourselves in as we traveled through the roughest time in our lives. The Journey of Hope was a crucial part of our grief recovery. It gave us strength and courage as we tried to get pregnant again (Jackson Neill Clapp is now 19 months old and a bright shining star in our lives). It is in giving that we receive...and so I am grateful and proud to now facilitate the same adult group that my husband and I attended. What a gift it is to be that warm, soft blanket for somebody else.

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Journey of Hope Grief Support Center  3900 West 15th Street, Suite 306, Plano, Texas 75075, (972) 964-1600
Journey of Hope
is a nonprofit organization under the
Internal Revenue Code 501 c(3).  All donations are tax deductible to the fullest extent of the law.  


Last updated: 05/29/08.